Introduction: Gay, lesbian, bisexual and transgender youth face many unique risks and specific health issues. These youth are at greater risk for physical abuse, school and other problems, including poor body image, eating disorders, being bullied, running away from home, depression, suicide, chemical dependency, and STDs including HIV (3). It is important for physicians to be able to identify these adolescents in order to provide guidance and appropriately address their health needs. This requires informing patients that the doctor’s office is a safe environment, creating privacy and informing patients of confidentiality, and asking screening questions. In 1998 two studies were completed to address this topic. One survey self identified gay, lesbian, and bisexual youth while the other reported on pediatricians (1,2). Allen et al. surveyed 102 self identified GLB individuals between the ages of 18-23 years about their healthcare experiences when they were between the ages of 14-18. They found that “78% of the subjects never discussed their sexual orientation with their healthcare provider but desired to do so.” The identified obstacles were a lack of understanding confidentiality and fear of parents being informed, discussing their sexual orientation in front of parents, fear of judgmental responses by healthcare providers, not being asked, and a lack of pamphlets or other visual aids indicating that the office was a safe zone (1). The study by East and Rayess was a cross-sectional survey of 200 Washington DC area pediatricians. Of the 60 pediatricians responding, 68% did not include sexual orientation in a sexual history at any age and 90% had reservations about addressing sexual orientation. The major reasons for reservations were “do not know how to ask the question” and “not knowing enough about the issues.” Little is known about more recent physician practices and there is no data about the practices and views on sexual orientation of pediatricians in Connecticut. This study surveyed Connecticut pediatricians to examine the barriers and current trends in the identification of GLBT adolescents. Methods: True Colors is an organization dedicated to creating a world where all sexual orientations and gender identities are valued and affirmed. They provide education, mentoring and advocacy. This research was conducted with their collaboration. The survey, cover letter and a prepaid, pre-addressed return envelope were included in a packet and information guide on CD listing community resources. This was sent to all Connecticut pediatricians identified through the mailing list of (n=550) in the fall of 2007. The survey included information about physician demographic characteristics, practice setting, experience with patients who initiate discussion of GLBT issues, sexual orientation history taking and barriers to identifying GLBT adolescents. Many of the questions about barriers were adapted from the work of Allen et al. (1998) and East and Rayess (1998). The questionnaire contained multiple choice, Likert responses, yes/no, and open-ended questions (See survey in Figure 1.). Data was entered in Excel, recoded and analyzed in SPSS V. 15. Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved Results: Demographic Characteristics: 89 Connecticut pediatricians responded to the survey representing a return rate of 16.4%. The responding pediatricians varied in age from 26 to 82 and the number of years in practice ranged from 0 (first year in practice) to 55. Most of the respondents were female (60%). The location of practicing physicians was evenly divided between urban, 49%, and non-urban, 51%. Practice Settings: Most practice populations were predominantly white (57%). The predominant type of patient insurance was “mostly private” by 43% compared to public, self pay or mixed. Thus, there was a fairly equal distribution of responding pediatricians of all ages, years in practice, location, patient ethnicity within the practice and patient insurance. (Table 1) Conducting Social and Sexual History: Talking with the patient alone. The majority (75%) reported that they ask guardians to leave once a child reaches a certain age. The age of initiating an interview with the child ranged from 11 years to 16 years with 13 years as the mode (42%) and 11 to 13 years representing the majority of responses at 86%. The rest (25%) of pediatricians do not make the determination based on age, but either ask the patient in front of the guardian, ask the guardian to leave if they suspect that the patient has issues they’d like to keep from their guardians, or do not ask guardians to leave. Confidentiality. The majority (74%) of pediatricians discussed confidentiality with every patient, the remainder only discussed confidentiality when they thought the patient might be engaging in risky behaviors; only one respondent indicated that they do not discuss confidentiality with patients. GLBT patients. In response to the question “approximately what percentage of your patients have told you that they are questioning their sexual orientation or that they identify as gay, lesbian, bisexual, or transgender?” most (65%) said none and the rest said <5%. Sexual History. The majority of physicians (87%) said that they ask every patient about sexual activity once they become a certain age. Of those who asked at a certain age, the age ranged from 11 to 16 with 13 being the most common (34%), 67% asked between the ages of 11 to 13 and 33% asked between ages 14-16. The 13% of pediatricians who did not ask every patient once they reached a certain age only asked patients who seem like they might be sexually active. Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved Sexual Orientation. Almost half of the pediatricians (49%) said they ask every patient about sexual orientation/gender identity (questioning or gay, lesbian, bisexual, or transgender) once they become a certain age. The age of initiating this question ranged from 11 to 16 years with 13 years being the most common (19%), 11-13 (62%) and 14-16 (37%). Slightly over half (51%) responded that they either do not ask any patient about sexual orientation or gender identity (21%) or only ask patients who seem gay/lesbian/bisexual/transgender (25%). Asking the questions. The majority (76%) of pediatricians reported always using gender-neutral questions (strongly agree/agree). The remainder 24% reported that they did not (disagree or strongly disagree). A third (34%) of pediatricians said they have a specific phrase/question that they use to ask adolescent patients if they are questioning/gay/lesbian/bisexual. The phrases varied widely, but the most common was “do you have sex with men, women, or both” while some asked if they were “interested romantically in boys, girls, or both.” The majority (69%) said that they had no reservations about discussing issues of sexual orientation/gender identity with adolescents. Of the respondents who had reservations, 48% said this was because they did not know how to ask the questions, 21% thought that asking might offend the patients, and other responses were not knowing enough about GLBT population needs, questions, or resources, were afraid of offending guardians, or felt they did not have enough time. Office environment. In response to the question of whether they had any visual cues in the office to suggest that the office is a safe place to discuss issues of sexual orientation/gender identity, 98% said no. Knowledge about GLBT issues. In response to the statement, “I am knowledgeable about gay, lesbian, bisexual, and transgender specific health,” 64% said they either strongly agree or agree. Respondents were asked what they would like to learn in order to provide better care for this population. The three most common responses were how to ask the questions (75%), community resources (70%), and specific health issues in this population (83%)(multiple responses allowed). Physician Practice Characteristics and Social/Sexual History Taking There was a clear and overlapping relationship between practice characteristics (ethnicity, urban/non, and insurance status of patients) and timing of taking a sexual history. Of the 87% of pediatricians who asked about sexual activity once the patient becomes a certain age, those with mostly non-white patients were more likely to ask about sexual activity at a younger age (p=0.021). patient insurance type and the age that the patient was asked about sexual activity (p=0.022) and between the location of the pediatrician’s practice and the age that the patient was asked about sexual activities (p=0.014). Pediatricians with Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved “mostly white” patients, “mostly private insurance,” and a “non-urbansuburban/rural” practice asked about sexual activity at an older age than pediatricians with “mostly non-white,” “mostly non-private insurance-public/self pay,” and “urban” location of practice asked about sexual activity (Table 2). Of the pediatricians that ask patients about sexual orientation/gender identity, there is a significant difference between patient insurance and the age that the patient is asked about these issues (p=0.029). Pediatricians with patients that have “mostly private insurance are more likely to ask about these issues at an older age (14-16 years) than pediatricians with patients that have “mostly nonprivate-public/self pay” insurance (11-13 years)(Table 3). Discussion: For many years, pediatricians have struggled with how to manage the issues of sexual orientation and gender identity. Studies have shown that the gay, lesbian, bisexual and transgender youth face many specific health issues that are unique from their heterosexual peers (3). Therefore, it becomes important to identify these individuals in order to address their health needs. The 89 CT pediatricians who returned the surveys represented a broad distribution of age, years in practice, sex, and location of practice, patient ethnicity, and patient insurance. Because the response rate was low (less than 20%) there may have been a selection bias towards pediatricians who are more comfortable and experienced with GLBT issues. Also, there may be bias toward socially acceptable responses and thus an under-reporting of behaviors, which may not be supportive of GLBT health. However, if these results are skewed toward more GLBT-friendly responses, it only makes the findings more compelling. The majority (70%) of the responding pediatricians reported that less than 5% of their patients had told them that they are questioning or identifying as gay, lesbian, bisexual, or transgender and 22% said that none of their patients had ever told them this. Although there are few studies documenting the percentage of adolescents who are questioning or identify as GLBT, the Allen et al. study found that 78% of adolescents who self identified as gay, lesbian or bisexual never discussed their sexual orientation with their health care provider, although they wanted to discuss the topic (2). It can be assume that even more adolescents are questioning but have not identified as GLBT. This suggests that the majority of pediatricians who said they don’t have any patients who are questioning or identify as GLBT have failed to identify these patients. It most likely does not represent the true reality. There are many barriers to patient willingness to disclose their questioning or GLBT identity. The first barrier is complete lack of visual cues, which would indicate that the pediatrician’s office is a safe zone for discussing such issues, as Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved demonstrated by the fact that almost none of the offices have any stickers, posters, pamphlets, or statements/questions about confidentiality health questionnaires. The next barrier is the issue of privacy and confidentiality. While 75% reported that they always ask guardians to leave during the social history and always discuss confidentiality with patients, that means that 25% are failing to create a supportive environment. The next set of barriers involves language. A majority (75%) of responding pediatricians believed that they used language that was neutral and did not presume sexual orientation or gender identity. This suggests that the remaining pediatricians are using presumptive language that may dissuade the adolescent from discussing such issues. While using gender-neutral language helps establish trust, the next barrier is actually asking the question about sexual orientation. Although nearly 90% of pediatricians always ask about sexual activity, this does not identify many adolescents who are questioning or identifying as GLBT. Of note, the age at which most adolescents were asked about sexual activity was 13 years, but this age was older (14-16 years) in nonurban, mostly white and private insurance pediatric practices. Almost half (49%) of pediatricians are asking about sexual orientation. While this does represent an improvement from 10 years ago, when only 32% included sexual orientation in the social history (2), it still indicates that many pediatricians are not asking about the important issues of sexual attraction and perception of gender identity. Practice characteristics also played a significant role in the age at which pediatricians are asking patients if they are questioning or identifying as GLBT. Practices that were “mostly white,” asked about sexual orientation at an older age (14-16 years). This suggests that pediatricians in practices with primarily suburban, white, privately insured patients assume that adolescents in their practices engage in romantic relationships at an older age than their counterparts. The reasons why pediatricians are not asking about sexual orientation and gender identity seem to focus on reservations about how to ask about such sensitive issues. Again, there has been improvement since 1998 when 90% expressed reservations (2). This study found 31% had reservations about discussing such issues with patients. However, only 31% of pediatricians had developed a specific phrase that they used to ask adolescents if they were questioning or identifying GLBT. Not having a phrase or being able to find the right words is not a new problem. Now, just as ten years ago, the most common reason for reservations was “I don’t know how to ask the question.” It appears that pediatricians now feel more knowledgeable and aware of this population and its specific health needs. Ten years ago, 33% listed a lack of knowledge as their major reservation for discussing GLBT issues with patients, while today, 21% described a lack of knowledge as the major reservation (2). Also, ten years ago 75% wanted and needed more information about GLBT health, while only 41% requested additional information this year. GLBT issues Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved have received increasing visibility and advocacy and this may have resulted in increased pediatrician awareness. It may be that pediatricians are more knowledgeable and therefore feel less of a need for information. This study indicates that pediatricians are taking steps towards creating a private and confidential environment to discuss GLBT issues but are failing to provide visual cues to their openness to discussing the issue and are failing to initiate the conversation. Further research is needed to assess pediatrician practice in a larger and more representative population. This should be accompanied by research on adolescent views of how many of these practices are actually reaching them. This preliminary study suggests that there is still room for improvement in the identification of gay, lesbian, bisexual, and transgender adolescents. Acknowledgements: The author would like to thank Professor Judy Lewis, Robin McHaelen and True Colors for their support of this project. References: 1. Allen LB, Glicken AD, Beach RK, Naylor KE. Adolescent health Care Experience of Gay, lesbian, and Bisexual Young Adults. Journal of Adolescent Health. 1998; 23: 212-220. 2. East JA, EL Rayess F. Pediatricians’ Approach to the Health Care of Lesbian, Gay, and Bisexual Youth. Journal of Adolescent Health. 1998; 23: 191192. 3. Saewyc EM, Bearinger LH, Heinz PA, Blum RW, Resnick MD. Gender Differences in Health and Risk Behaviors Among Bisexual and Homosexual Adolescents. Journal of Adolescent Health. 1998; 23: 181-188. Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved Table 1: Pediatrician Demographics Female 60% Male 40% 0-7 yrs in practice 21% 8-25 yrs in practice 46% >25 yrs in practice 33% Non-Urban practice 51% Urban practice (suburban/urban) 49% Mostly white patients 57% Mostly non-white patients 43% Mostly private insurance 43% Mostly non-private insurance (public/self57% pay) Table 2: Age Upon Which the Pediatrician First Asks About Sexual Activity Demographic % Asking at ages % Asking at P value 11-13 yrs ages 14-16 yrs Non-Urban practice 54% 46% P = 0.014 Urban practice 81% 19% Mostly white patients 56% Mostly non-white patients 81% Mostly private insurance 53% 44% 19% 43% Mostly non-private insurance 78% 22% P = 0.021 P = 0.022 Table 3: Age Upon Which the Pediatrician First Asks About Sexual Orientation/Gender Identity Insurance Type% Asking at ages % Asking at ages P value 11-13 yrs 14-16 yrs Mostly private 38% 62% p = 0.029 Mostly non-private 75% 25% Special Issues Final Report, June 2008. Michelle Aubin, all rights reserved