mmle TOWN - Friday. February 24 DALLAS, TX FEBRUARY 24-25, 2017 TIME TOPIC LOCATION 6:00 PM - 7:00 PM DINNER RECEPTION 7:00 PM -- 5:00 PM . SOCIAL HOUR 10p1lonal] Addison Room (Lobby Level) Saturday, February 25 TIME TOPIC LOCATION 7:30 AM -- 9:00 AM BREAKFAST Addison Room (Lobby Level) 9:00 AM -- 9:30 AM WIIcoma 8 Introduction Mike Henley. Honzan Pharma aenl Tree Ballroom (Lobby Level) 9:30 AM -- 10:30 AM oysiinosls Resources a. Services Jenmier Caugmin. Ph Moderalor Bent Tree Ballroom (Lobby Level) 10:30 AM BREAK 10:45 AM -- 12:30 PM AII About Cystinasis Nils ConIev. Ph MBA, Honzon Pnarma Bent Tree Ballmom (Lonny Level) 12:30 PM 41:30 PM LUNCH Addison Room (Lobby Level) 1:30 PM --3:15 PM My cvsunosis Journey Jennller Ph . Moderalor Mesqulte I Room (Lobby Level) 3:15 PM --6:00 PM BREAK 6:00 PM - 7:00 PM DINNER RECEPTION Addison Room (Lobby Level) 7:00 PM - 5:00 PM SOCIAL HOUR (Opfional) Addison Room (Lobby Level) Sunday, February 26 TIME TOPIC LOCATION 7:30 AM -- 5:00 AM BREAKFAST Addison Room {Lobby Level) 3:00 AM - 10:00 AM Cysiinosis Family Resources Molly Keane, LCSW: ITII 1 Jenna Caugmm. Moderator 55mm" 3' aeni Tree Ballroom [Lobby Level) Fol mlema/ use my No! (a in shared mm mm: Dames ?43: TOWN Sunday, February 26 (continued) DALLAS, TX I FEBRUARY 24-28. 2017 TIME TOPIC LOCATION 10:00 AM - 10:15 AM BREAK - 11:30 AM Living Room Session: Thriving with Cystinosis Jennifer Caughlin, Moderator Mesquite I Room (Lobby Level) l11:30 AM DEPARTURES BOXED LUNCHES AVAILABLE (. JFIDENTIAL For Internal use onfy. Not to be shared With third rt pa Ies miimix TOWN DALLAS, TX 24-26, 2017 02/24/201 7 Welcome to Dallas and thank you lor your participation in our Cystinosis Patient Caregiver Town Hall The Town Hall provides an exciting opportunity lor patients and caregivers to share points oi and help shape the iuture ol lreatment for those aflecled by nephropathlc cystinosis. It is a wonderlul opponunily to help Horizon Pharma gain insight into disease awareness, as well as patient and caregiver attitudes, oeliels and behaviors regarding treatment. Through this, we hope to improve the support educational resources and educational tools available to the cysl'inosis communlly We anticipate that the sessions will be interactive and dynamic and look iorward In your participation The enclosed agenda provides additional details on our schedule. A snapshot ls provided below: - Dinner on Friday and Saturday evening will begin at 5:00 PM in lhe Addison Room located on the Lobby Level Break'ast will be available on Salurday and Sunday at 7:30 AM ln Ihe Addisan Room located on the Lobby Level The meeltng convene al 9'00 AM on Saturday and Sunday in the Ben! Tree Ballroom located on the Lobby Level Our Hospitality Desk will tie located adjacent to the meeting space and will be open during the meeting Please visit us with any requests. questions or concerns you have. Thank you again Var finding lime in your busy schedule ID joln us! Sincerely. Eric Mosbmokar Group Vice Presidenr a. General Manager Americas and Asia Paclfic Orphan Business Unit Pnarma CONFIDENVIALs Forlnremzl use only No! lo be shared mm mm! paniss derailpionners EXPENSE REPORT 2629 Windguard Circle. Suite 101 Reasonable and customary expenses related Wesley Chapel, FL 33544 to your participation will be reimbursed. United States Phone: 813.991.1348 PLEASE MAIL WITHIN 10 DAYS FROM THE Fax: 3134542373 END OF THE MEETING AND INCLUDE ORIGINAL RECEIPTS. if received later. we may not be able to reimburse. Program Name: Patient 8: Caregiver Town Hall HoteliCity: DallasiAddison Marriott Quorum by the Galleria i Dallas. TX Dates: February 24-26. 2017 Please indicate where to send check below: Name Address Phone PLEASE COMPLETE AND SUBMIT TO DETAIL PLANNERS WITH ORIGINAL RECEIPTS. RECEIPT DOCUMENTATIQN IS REQUIRED FOR REIMBURSEMENT. NOTE: If you drove to the meetingI will be reimbursed S0535 Qer mileI rig for fuel purchaes. Contact us at 813-991.1348 or pam@detailplanners.com. Description Details If you drove to the meeting. enter round-trip mileage Mileage driven here: (multiply by $0.535 for amount column) Balance due toifrom OFFICE USE ONLY Date approved Amount approved Date entered Date mailed Check number Patient 8. Caregiver Town Hall Evaluation Dallas, TX EISTIIOQS TOWN HALE February 24-26, 2017 Thank you for attending our Patient Town Hall. We are interested in getting your feedback on the program and welcome your suggestions for future meetings. Please note that this feedback is anonymous. We value your perspective and appreciate your time in ?lling out this survey. Which category describes your role at the Town Hall? (Please select one) El Patient El Caregiver PROGRAM LOGISTICS ij Please rate the following elements on a scale of 1 through 5: Recruitment process 1 Cl 2 3 El 5 Very Dissatis?ed Neutral Very Satis?ed Comments: Travel arrangements Very Dissatis?ed Neutral Very Satis?ed Comments: Meeting location (city and stateVery Dissatis?ed Neutral Very Satis?ed Comments: Hotel El 1 El 3 El 5 Very Dissatis?ed Neutral Very Satis?ed Comments: CommentsTown t' patent a. caregw Han at. 939 Februa 0 24?23?\ El 3 TOWN Meeting planners Sati Very Dissatis?ed Neutral ry S?ed Comments: Meals Very Dissatis?ed Neutral Very Satisfied Comments: MEETING CONTENT How would you rate the length of the meetingVery Dissatis?ed Neutral 11 a i Comments: ry 8 ed Overall, how would you rate the quality of the general Sessi Very Dissatis?ed BUtraI 4 5 Comments: Very Satis?ed Overall, how would you rate the quality of the 1 [j 2 ream? sessions? El 3 Very Dissatis?ed '3 4 El 5 Neut ral Very Satis?ed .5- Patient Caregiver Town Hall Evaluation Dallas, TX . Feb 2 - TOWN HALL ruary 4 26, 2017 What parts of the meeting were most valuable to you? What parts of the meeting were least valuable to you? What other t0pics would you like to have discussed? Did you feel your input was valued? (Please circle one) YES NO Comments: What topics would you recommend for future Patient Town Halls? What other suggestions do you have for Horizon Pharma to improve their interactions with caregivers and patients? If we have future programs of this nature, would you be interested in participating? (Please circle one) YES 1 NO What is your overall level of satisfaction with this eventVery Dissatis?ed Neutral Very Satis?ed Comments: Thank you for your participation. CONFIDENTIAL INFORMATION NOTICE Due to the highly con?dential nature of this meeting, we will adhere to a strict policy of document management. Any papers left in meeting rooms after sessions will be collected and shredded. TIME ZONE Dallas is in the Central Time Zone Eastern Time Zone is +1 hour Mountain Time Zone is -1 hours Pacific Time Zone is -2 hours CONFIDENTIAL 255E cesium .ow.vm, 3: Zach ham/x Mmiomgo a PEPE (\ufiw m1>> >442mwwm003w m4: mih ZOHHMAQEOOKQ ilk!